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La Fundación para la Investigación del Mieloma Múltiple (MMRF) es una organización sin fines de lucro que se dedica a encontrar una cura para el mieloma múltiple, un tipo de cáncer que afecta las células plasmáticas de la médula ósea. La MMRF fue fundada en 1998 por Kathy Giusti, a quien se le diagnosticó mieloma múltiple a los 37 años. Desde entonces, la MMRF se ha convertido en una de las organizaciones líderes en la lucha contra esta enfermedad.
La misión de la MMRF es acelerar la investigación de nuevos tratamientos y, en última instancia, encontrar una cura para cada paciente diagnosticado con mieloma múltiple. Para lograr este objetivo, han desarrollado un enfoque innovador para la investigación que se centra en la colaboración y el intercambio de datos entre investigadores y médicos.
Una de las iniciativas clave de la MMRF es su estudio CoMMpass, que significa "Relación de los resultados clínicos en el mieloma múltiple con la evaluación personal del perfil genético". Este estudio implica recopilar datos de miles de pacientes con mieloma múltiple durante varios años para comprender mejor cómo los diferentes perfiles genéticos afectan los resultados del tratamiento. Los datos recopilados de este estudio se utilizarán para desarrollar tratamientos más personalizados para los pacientes en función de su composición genética individual.
Además de sus iniciativas de investigación, la MMRF también brinda apoyo y recursos para los pacientes y sus familias a través de su Centro de Navegación de Pacientes. Este centro ofrece apoyo personalizado gratuito de profesionales capacitados que pueden ayudar a los pacientes a navegar a través de todos los aspectos de su proceso de atención.
La MMRF ha recibido numerosos elogios por su trabajo en el avance de la investigación y la mejora de los resultados de los pacientes. En 2016, recibieron la calificación más alta de Charity Navigator (cuatro estrellas) por su sólida gestión fiscal y su compromiso con la rendición de cuentas y la transparencia.
En general, la Fundación para la Investigación del Mieloma Múltiple es una organización que está logrando avances significativos para encontrar una cura para el mieloma múltiple. Su enfoque innovador de la investigación y su dedicación a la colaboración los convierten en líderes en este campo. Si usted o alguien que conoce ha sido afectado por mieloma múltiple, considere comunicarse con ellos para obtener apoyo o participar en sus esfuerzos para encontrar una cura.
themmrf.org
